The National Ataxia Foundation (NAF), in partnership with CohenTaylor Executive Search Services, is seeking an exceptional leader to serve as its new Vice President of Community Services.
For more information or to send your credentials, please email NAF@cohentaylor.com. All inquiries will remain confidential.
This is a newly established leadership role and a unique opportunity to shape how NAF serves more than 20,000 members and countless individuals and families affected by Ataxia.
Ataxia is a rare, progressive neurological disease that affects a person’s ability to walk, talk, and use fine motor skills. Since 1957, NAF has been at the forefront of supporting people affected by Ataxia while advancing research, accelerating treatments, and pursuing a cure.
As a member of NAF’s leadership team, the VP will define the vision, strategy, and direction for Community Services, ensuring programs and resources meaningfully improve the quality of life while responding to the evolving needs of the Ataxia community. They will lead an experienced national team, oversee a dynamic portfolio, and connect strategy, data, systems, collaboration, and compassion to build an integrated, innovative, and scalable approach to community services.
The ideal candidate is an experienced healthcare, nonprofit, or related program leader with experience in community services, advocacy, or nonprofit leadership. Experience with rare disease, neurology, chronic illness, patient or member support, advocacy, or care coordination is highly valued.
Salary Range:
$125,000. - $150,000
Location:
NAF is headquartered in Minneapolis, Minnesota. This is a remote position – the new VP may be based anywhere in the United States. Candidates outside the Minneapolis/St. Paul area will be required to travel quarterly, with travel expenses covered.